Lupus eritematoso sistémico: impacto educativo en la calidad de vida de los pacientes

Jesús David Hernández Carmona; Jairo Rojano Rada; Luis González Alvarado

Authors

Jesús David Hernández Carmona Hospital Dr. Miguel Pérez Carreño
Jairo Rojano Rada Centro Biomédico de Medicina Interna-CEBIME y Director de la Unidad de Reumatología Hospital "Dr. Miguel Pérez Carreño"
Luis González Alvarado Hospital Dr. Miguel Pérez Carreño

Keywords:

Lupus, Education, Quality of life, illness

Abstract

Objective: To analyze the impact of an educational program in patients with systemic lupus erythematosus and its effect on the quality of life attached to the unit rheumatology Dr. Miguel Perez Carreño Hospital during 2016. Methods: An experimental study where two groups were compared: 1 group which was intervened educationally about Lupus and 1 group which was intervened educationally about other health-related issues. All patients were chosen from the unit of rheumatology at the Hospital Dr Miguel Perez Carreño. Results: 50 patients were included in the study, 25 in each group. It was demonstrated in both groups no knowledge about their condition (points mean: experimental: 9.4 vs control: 11.1). The quality of life related to health in both groups both physical and mental was not favorable pre educational intervention. Adherence to treatment improved after the educational intervention (p <0.05). Conclusion: The results of the research indicate that the impact of the educational program was favorable by significantly improving the knowledge of the disease, the quality of physical and mental life, achieving a better adherence to the indicated treatment and decreasing in turn the level of activity of the LES.

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